Coping With the Death of a Special Needs Child

Nolan Bruinsma was born February 11, 2005. He was the firstborn of Greg and Liz Bruinsma. We were young, newly married, and ready to start a family. At six weeks old, Nolan experienced second-degree sun burns on his hands and face after going for short walks outside under his stroller canopy for two consecutive days in April. This raised alarm bells. Nolan's maternal uncle had a rare genetic disorder called Xeroderma Pigmentosum. What are the chances that Nolan could have this same genetic...